Traveling with a medical device or mobility aid adds an extra layer of complexity to packing and planning a trip, but it is possible. It’s not simple, but with the right preparation, you can make it work.
One strategy that helped me was packing a separate suitcase for all my medical supplies, including formula, feed bags, tube extensions, drainage bags, medications, syringes, etc. To ensure I could locate it if it got lost, I placed a Tile tracker inside. Since I was flying overnight, I had to bring my feeding tube pump, feed bag, pill crusher, night medications, syringe, and enough formula in a backpack for use during the 10-hour flight.
Going through security with cartons of formula can be challenging, as they often require additional testing. To expedite this process, I take the formula out ahead of time and explain my condition and the medical purpose. This generally works. However, at one airport in France, despite my explanation, they threw away the formula in my backpack. That experience was frustrating, but fortunately, it was a shorter flight.
I also highly recommend bringing a neck brace on long flights if you have neck problems or instability. The support from my neck brace helped manage my head and neck pain during longer flights. And, noise-canceling headphones or airpods are key.
I used to think that traveling with a chronic illness and a feeding tube was near impossible. No doubt, it’s harder, but with good planning and organization, it is possible!
